I’m really tired of the way disabled people are currently treated.
If we talk too much about our disabilities? Oh, we’re too NEGATIVE. We’re just whining. We need to try ~positive thinking~ *tosses glitter*. We just need to be more positive! Yay!
If we try to be too positive about our disabilities? See, it’s not really that bad. We can’t be THAT disabled if we’re able to see the good in it. If we’ve accepted our disabilities, then we must not really be disabled.
The thing is, no matter what we do, people seem uncomfortable that disabled people exist. Some think that we should be willing to share every detail about our lives, some think we should just shut up and live in silence.
The thing is, EVERY person has a DIFFERENT level of comfort with what they are okay with sharing or note. For the most part, I am happy to talk about my disabilities and teach and educate. But sometimes, I just plain don’t want to and there is nothing wrong with that! I don’t owe anyone an explanation on why or how a certain aspect of my disability affects me. “Because I’m disabled” IS an adequate answer to “why can’t you do thing?” and details aren’t necessary.
As an activist and an advocate, I think it’s important to be open and honest about my disabilities. Which, for the most part, I am. However, that doesn’t change the fact that there are some things I am more private about and don’t really want to talk about. And just because I’m willing to write about it, doesn’t mean I want to answer the random person on the bus who asks me about it.
I get to choose when, where, why, and how I talk about my disability. That isn’t for someone without my disability to decide. If they don’t want to hear about it, they don’t have to put themselves in a position where they have to listen. If I want to share why or how a certain thing affects me, that’s okay! I’m not being negative or candy-coating my disability or whatever. If I don’t want to, it doesn’t mean I’m not “really disabled” or I don’t “really want to educate”. I have a right to privacy just like anyone else.
People should be able to talk about their disabilities how they want.