I see a lot of bullshit in autism and autistic communities about those who self-diagnose. They try to say that their identity isn’t valid, or that they just must not be autistic enough, or a whole slew a thing. There’s a plethora of problems with this.
First of all, read this.
And now we are going into my personal beef with people who bash those who self-diaganois.
- It is classist. Testing is expensive and often not covered by insurance.
- The testing is EXTREMELY taxing and emotionally overwhelming. The fallout from testing can be sometimes not worth getting the official DX.
- For some. once the official DX is in your medical chart, it can cause doctors to be ableist and ignore other very real problems, brushing it all up to autism.
- Getting a DX can literally endanger lives as autistics are more likely to be murdered at the hands of police – even when they know the person is autistic.
- It doesn’t stop the “you’re not really autistic” bullshit.
- Even if you can afford the testing or your insurance covers it, if you don’t find a provider you’re comfortable with, the testing results may not be accurate
- You still could be misdiagnosed and this can be soul-crushing.
- You’re still denied either agency or resources
- You don’t escape the functioning labels. You’re still labeled as “smart”, “high functioning”, or “mild” and hearing doctors throw around those words in relation to you all the time sucks ass.
- It’s sexist. Women are less likely to get the official DX. Not only that, this excludes gender non binary people, which is another problem all together.
Next week I will write 10 more reasons why denying people the right and freedom to DX themselves is problematic at best.